Batten Disease Family Association CIO
www.bdfa-uk.org.uk/
10,000ft - £500
About Batten Disease Family Association CIO
Who We Are:
The Batten Disease Family Association CIO (BDFA) is the only patient organisation in the UK for the families affected by Batten disease, a rare and terminal neurodegenerative condition that causes profound disability in children. It is a devastating and life-changing diagnosis. The BDFA was set up in 19998 by a group of parents of children with Batten disease, who were determined that no family should walk this path alone. Over the years, the BDFA has been providing vital emotional and practical support to affected families.
What We Do:
Our mission is to enable children and adults who are effected by Batten disease to live life to the full and provide families with the care and support they need so that they do not walk this path alone. The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure. We advocate for families across education, health and social care, ensuring they have access to the support they need.
Why We Need You:
The BDFA received no government funding and relies on the strong commitment of community fundraisers to continue to provide crucial one-to-one support to affected families and newly diagnosed children, develop our services and support research into therapies and treatments. Your support is greatly appreciated as we continue to walk alongside these families, advocating for them to ensure that they have access to the best possible care and support.
Charity Details
Batten Disease Family Association CIO
Contact:Sarah Chandler
Email:sarahchandler@bdfa-uk.org.uk
Telephone:07511821181
Website:www.bdfa-uk.org.uk/
Charity Sector
Jump Dates
Choose a pre-booked jump date:
Batten Disease Family Association CIO has no pre-booked jump days. You can still jump on a date of your choosing.
Choose your own jump dateFundraising
Raising money for your tandem skydive via an online fundraising page makes it quick and simple for your friends and family to support you. You can share the link to your fundraising page via your social media pages and through texts and emails. If you haven’t done so already click through now and set-up your page or check out our Fundraising Ideas page to help you get the most out of your Charity Skydive.
How it works
Booking a charity jump
If you need help putting together your jump package, our Sales Team is more than happy to assist you. We’ll ensure you get a charity discount of £25 off our 10,000ft or 15,000ft skydives when your charity is selected. Determine if your charity expects you to meet a fundraising target or if you will be self-funding the skydive.
You’re all set to start fundraising once you’ve booked your skydive! Your charity can help you with fundraising, and we’ll be available to answer any questions you have about the skydive!
Build your team
Skydiving is even more exhilarating when shared with friends, why not invite your friends and family and create a shared experience with memories that will last a lifetime.
Select Your charity
Choose one of our 300 registered charities or jump in support of your own charity. Each registered charity will state if they will contribute to some of your jump cost or if you need to self-fund your own place.
Book your Skydive
Book individually or as a group with just a £50 deposit per person. Some of the charities we work with have reserved spaces on pre-booked days that you are more than welcome to join. See our date picker tool below.
Start fundraising
OK you're all set - We recommend you set up an online fundraising page as all funds you raise will automatically go to the charity of your choice.
Don't see your charity listed?
You can still jump for them!
Non-partnered charities at GoSkydive offer a unique opportunity to make a positive impact while experiencing the exhilaration of skydiving. These charities, though not officially affiliated with GoSkydive, collaborate to raise funds and awareness for various causes. Participants can choose a cause close to their hearts and raise money individually or as part of a team, diving headfirst into an adrenaline-fuelled adventure that also helps those in need.
Our non-partnered charities still receive the same great discount of £25 off a 10,000ft or 15,000ft skydive that our partnered charities do. All you need to do is pay the balance of your skydive yourself and fundraise as much as you can for your chosen charity on the side!