Customer Support
01722 568604
Customer Support
01722 568604
Who we are
Idiopathic Intracranial Hypertension (IIH) is a neurological condition of unknown cause defined by increased intracranial pressure (ICP) around the brain without the presence of tumour or disease.
The space around the brain is filled with water like fluid (Cerebrospinal Fluid – CSF). If, due to a variety of factors, the pressure around the brain rises then the space containing the fluid cannot expand. It is this excessively high CSF pressure that produces the symptoms of IIH.
What we do
Over the course of 2016 IIH UK will continue to work to ensure that we become part of a collective voice of organisations that represent genetic and neurological conditions. This will enable further awareness and campaigning for improvement for the lives of patients and families affected by IIH. In addition, this will assist in IIH being better understood by the general public and by all professionals with whom IIH patients come into contact. IIH UK are working closely with Dr Alexandra Sinclair the UK’s IIH expert and her team of clinicians in Birmingham. During 2015 we began the process of setting up a Priority Setting Partnership facilitated by the James Lind Alliance, where we will come together with clinicians and patients to prioritise and determine the Top Ten areas of IIH research that are deemed the most important and need further research.
Why we need you
Thank you for thinking of us! We want you to enjoy yourself whether it be running a marathon or a delightful afternoon tea fundraising event! If this is the first time you have ever fundraised, don’t worry, we can help! We have resources that can help raise the profile of your event and useful tips to make your event a great success. If you are a pub or shop or club, we have charity pots available – the pennies soon add up! For large events we have sashes and flags available too. If you are undertaking a sporting event such as running or cycling and wish to raise money for IIH UK, we have IIH UK vests that can also help raise awareness of IIH and the Charity.
Raising money for your tandem skydive via an online fundraising page makes it quick and simple for your friends and family to support you. You can share the link to your fundraising page via your social media pages and through texts and emails. If you haven't done so already click through now and set-up your page.
