Who we are:

We are the leading UK charity supporting people affected by craniosynostosis and other rare craniofacial conditions.    Around 350 babies are born with craniosynostosis in the UK every year.

Craniosynostosis is a condition where two or more plates of the skull prematurely fuse to each other, usually before birth, resulting in a baby’s skull not growing properly and its head shape being different at birth.    If left untreated, it can lead to a range of serious complications.

What we do:

We provide support and information to people affected by craniosynostosis and other rare craniofacial conditions  to help them   overcome the physical, psychological and social impacts of living with these conditions.

We  support research that seeks to advance understanding, ensures the provision of quality care, and identifies the best treatments for craniosynostosis and rare craniofacial conditions

We also campaign to raise awareness and increase public understanding of  craniosynostosis and related conditions.

Why we need you:

We need your support to raise funds to help us achieve our vision of a world where the physical, psychological and social impacts of craniosynostosis and related craniofacial conditions are no more.